Just a quick, much more upbeat post to follow on from my last slightly less happy one of last week.
Referring to the post (https://spleniclymphoma.com/2013/09/10/im-not-ok/) I actually posted this once I had started to feel better from my slight funk so that when people messaged me I could say I felt ok. The reason I posted it then was so I didn’t want to pour my heart out to loads of people. The reason for the post in the first place was that I now have a number of fellow sufferers following me so I thought if I was going to be totally honest and try and raise awareness of my condition I had to include the negatives as well. It wasn’t easy to put it out there and I took a day or two to think it over but I decided it needed to be shared.
Its all well and good posting about my irritation with Travel insurers (https://spleniclymphoma.com/2013/09/05/travelling-with-cancer/ )
but I’m sure some people thought, what’s your problem, you’re the one going on ten holidays a year so stop complaining. To some degree you are right, it is decadent, but they are mostly weekend breaks and I have a set amount of holiday like most people. Plus in some ways now I can’t run, I’m even more passionate about travel, so to me it is a bit of a deal.
Obviously though Travel Insurance is just a minor irritation compared to the reality of the situation, which only sometimes hits me.
I feel much better now and for the last week and have been enjoying dinners with friends and various other social bits and pieces (and unavoidably some work). I also watched the epic film Night of the Creeps, a 1986 blockbuster, as well as Sharknado, so you can tell life has been good.
I am off to Malta tomorrow for a week so that can’t be too bad either, and I think the holiday, located in one place and on the beach, will really help me chill out, especially as there is a group of 8 of us going and it will be sunny and wine filled.
The next blog post will be a slight break from all the doom and gloom and will be my typical travel email as a blog about the delights of Malta. After that I may take the piss out of some of the more radical treatments out there, then again I may not and may decide to do something completely different.
You’ll just have to wait and see….
So glad you are blogging again. I am following you because I think I also have this very rare form of NHL. The diagnosis sure stumps the docs doesn’t it – so I’m still awaiting confirmation. I should feel special, but somehow I don’t…So keep on blogging. I love traveling vicariously through you! Post pics of Malta! Stay healthy and please keep on keeping on.
Enjoy Malta. It is a tumultuous journey when you have a condition which is with you forever. Can I ask who you ended up getting your travel insurance with?
found your blog after lots of googling and worrying 28 years old and heading to haem and oncology this friday for bone marrow results, suspected lymphoma of spleen and bone marrow. large spleen and lush night sweats. reading your blog tonight has helped me to put the worry into some perspective. in short its ace. thank you