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So the pain in my left side is back. My friend Mr Spleen seems to have got bored after six months on holiday and now wants to play. Apparently giving up running was only a temporary solution.
Its only twinged in the last day or two, but I could definitely feel it when I was playing table tennis. Its like before, when it started, but I’m not doing any running. Its paining me a little at points, but only sporadically. Hopefully it’s only been jarred by something and will disappear on holiday again in a few days! It’s not too painful though so I can handle this, although if you see me grab my side then, well, just ignore me 🙂
What I’m having much more of a problem with is fatigue. I’d only just defeated Major toothache when his superIor General Fatigue makes an appearance. I’ve felt really tired for a few days now. Not, I’m pretty busy tired, more I have no energy tired, even after a good nights sleep. Its like at points everything is an effort. It’s strange to feel the need to sit down after a walk for example. Maybe I’m just getting old :).
I’m still working hard and doing everything I want to but I feel at a low ebb of energy at points and want to sit down.
An example from Friday is that I was playing table tennis and then had to sit down, went pale, and felt faint. Food and a sugary soft drink sorted me out. I had missed breakfast, but this was new one on me.
I was rather hoping I would be symptomless indefinitely…
The only slight silver lining is that there would be periods in my past where I was exhausted for no reason and I always thought that I was fighting some infection off. Then the tiredness would go away. So it could be that.
Well except for the spleen pain.
Anyway I do have my doctors appointment in a few weeks (26 of March to be precise). I will monitor it until then. Kirk Bannister suggested I keep a fatigue diary, so I might give that a bash.
Its funny, it could be just because I’ve been uber-busy but when you have a condition any small thing worries you. I had managed to forget about it for a couple of months, but even so, I am reconciled to my condition so its not like when I was first diagnosed.
In other news my book is delayed and will be out soon, I promise. I am giving most of the proceeds to cancer charity (If you were cynical you could say I was hedging my bets).
I hope all of you are ok, and as always I will keep you posted. You know, if I’m not too tired ;).
spleniclymphoma 
Fatigue is a real pain. I feel like an 80 yr old at the mo. Little jobs spaced with rests. The trouble is people look at you and don’t understand because you look normal. A fatigue diary is a good idea will give the docs a picture. Mark down if you run a temp too. Eat plenty of greens. Keep the faith x
Thanks Sam! You’re right, no one can see if your tired. Coffee and sugar are my friend at the moment. I will do a diary I think, although might have to buy a thermometer. I eat a lot of greens at the moment, so shall just keep that up! 🙂
Marcus not that i know about these things, but i would be very wairy about coffee and sugar. A rainbow diet everyday is best xx
I was diagnosed in 2011 after years of backwards and forwards to see my GP who prescribed painkillers that gave me reflux, told me to lose weight and suggested I was menopausal. It took my spleen swelling to the size of a rugby ball before anyone took any notice. Then a further 6 months of chasing various hospital depts (files not passed on, appointments not made etc) before I ended up having a splenectomy, by which time my spleen was way past my tummy button and I could barely walk more than the length of a garden path without feeling exhausted. I want to scream with rage at all the lost years when I couldn’t join in with family walks and activities, always felt such a drag on any trip out. Anyway, I am now on watch and wait and it’s tough. It does me good to read your blog, I applaud your courage and fortitude. I try hard to be positive, but do have a wobble somedays when I want to scream “it’s nit fair”….then I eat some chocolate and try and get on with it. Good luck to you, and thank you for your generosity in sharing.