Tags
cancer, dying, fever, kids, night sweats, Thrombocytopenia, weight loss
Last night was a little unpleasant. I’ve had a cold for a few days, mainly because I have had a holiday from work and that’s what happens when you have a break. It was no big thing, and other than the usual tiredness I get whenever I am Ill, or coming down with something, I didn’t think anything of it.
Last night I had a really high fever and terrible night sweats, soaking through the bed. I was really cold too so ended up with three blankets on. My dreams were very vivid and weird, I dreamed a large rabbit attacked me on the way home and bit my arm off. Which isn’t that normal…
This fever went on all night, and I took some drugs to drop it, which worked. Today I got up with the kids to get them ready for nursery at 7, but went back to bed until ten and then dozed from 2-4 in the afternoon, feeling cold.
Now the reason I go into so much detail is that this is not the first time this year. I had a very similar experience when I drove us to a wedding in Wales, and had to spend the next day in bed. I also had one other experience of it this year too, when I had to bail on Louise and Benji to go home one evening.
I am also tired a lot of the time and am now sure that it’s not just having the kids, as I am getting six to seven hours a night, and am still wiped out by four thirty after work, and just sleep on the train home.
My condition, splenic marginal zone lymphoma, has one main symptom, an enlarged spleen, and is diagnosed by white cell count. It does also have a series of secondary symptoms to watch out for as it worsens, night sweats, fever and weight loss (which I don’t appear to have). It can also reduce your platelets which it has in my case, giving you a whole run of other symptoms. (Thrombocytopenia)
- Prolonged bleeding from cuts
- Bleeding from your gums or nose
- Blood in urine or stools
- Unusually heavy menstrual flows
- Fatigue
- Enlarged spleen
- Jaundice
Now I accept the enlarged spleen and fatigue are just doubling up on the two conditions, but it could be either.
Anyway long story short we will see how my tests come back in December with these new symptoms in mind. It may be time for a spleenectomy, or some kind of treatment. Until then I’ll just keep a towel by my bed in case of sweating like a sprinkler.
I guess I have been generally quite lucky with my health up until this point. The house party of food poisoning, where seven went down with it, and I didn’t. Not having had a day off sick in six and a half years. Maybe my luck has just run out a little.
Joking aside it is a little concerning, especially with our kids being so young. I had hoped I would get another five years symptomless. I may still do, other than a horrible fever every three months, which I would still take. I’d just like to see the kids grown up, and don’t ask for any more than that. If I get it, I won’t complain though!!
Hope you guys are all good. Sorry its been so long since I posted, I rather overblogged during the walk and wanted to give everyone a rest :). I’ll keep you posted on any developments and will see what research has been released lately for another blog in a few weeks.
Cheers all 🙂
So sorry to hear this
Have you discussed an iron infusion? This really sorted out my mum’s tiredness – it was seriously getting her down. She’s now dealing with the sweats and itching but still on watch and wait as her spleen hasn’t enlarged too much.
Good luck with it all xxx
That’s interesting. I think I might find out what my iron level is, if they let me. I could certainly do with the tiredness dissipating! Then everything else gets easier 🙂 xxx
Every thing is crossed for u and ur results in December keep fighting ur doing amazing x
Thanks Kelly. Let’s hope they are good ones 🙂 x
Hi mate,
Keep your pecker up. Hopefully there is an innocent explinatiopn for these things – I always feel ill when I'm anywhere past Waterloo.
Am always free for coffee if you're in the Covent Garden area.
Regards Charles E De-R Turner Mob: +44 (0)7718 304 979 Mail to: charlesturner@post.com
Sent: Wednesday, October 03, 2018 at 8:20 PM From: spleniclymphoma <comment-reply@wordpress.com> To: charlesturner@post.com Subject: [New post] Finally some symptoms… Damn.
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Thanks Charles, it’s appreciated. I’ll let you know when I’m over your way!
I’ve been in remission for 8 year now, first diagnosed with splenomegaly.
For years between every quarterly blood test I’d feel pressure where my spleen is and I was worried it was a relapse. Every time blood counts were normal, even when I could feel the pressure the day of the blood sample. Shortly after the positive test results I’d be fine for a while. Even though I new that this was an experience common among cancer patients it still happened to me.
You may be right. Maybe I’m just Ill and because it’s been a while since the last test I’m conflating. I hope so! Thanks for your support, it’s very kind!
This is for everybody who might have SMZL and might be interested in joining our very small support group on Facebook. It is named SMZL Support Group so you can look for it that way and apply to join our group if you have it. There are only 35 members, showing how rare our lymphoma actually is. If you have any trouble finding the group please get back to me here and I’ll see if I can help you. It is very beneficial to me to be able to read about others and their counts etc. We are not a complaining group, just a supporting group. We have discussed splenectomy vs treatments and things like that. We would love to have you be a part of the group if you are at all interested.
I have been so interested in your SMZL because my numbers are just about like yours and I have not had treatment yet. It helps to have others who are in the same “rare boat”.
My request to join group has been pending for awhile