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Last night was a little unpleasant. I’ve had a cold for a few days, mainly because I have had a holiday from work and that’s what happens when you have a break. It was no big thing, and other than the usual tiredness I get whenever I am Ill, or coming down with something, I didn’t think anything of it.

Last night I had a really high fever and terrible night sweats, soaking through the bed. I was really cold too so ended up with three blankets on. My dreams were very vivid and weird, I dreamed a large rabbit attacked me on the way home and bit my arm off. Which isn’t that normal…

This fever went on all night, and I took some drugs to drop it, which worked. Today I got up with the kids to get them ready for nursery at 7, but went back to bed until ten and then dozed from 2-4 in the afternoon, feeling cold.

Now the reason I go into so much detail is that this is not the first time this year. I had a very similar experience when I drove us to a wedding in Wales, and had to spend the next day in bed. I also had one other experience of it this year too, when I had to bail on Louise and Benji to go home one evening.

I am also tired a lot of the time and am now sure that it’s not just having the kids, as I am getting six to seven hours a night, and am still wiped out by four thirty after work, and just sleep on the train home.

My condition, splenic marginal zone lymphoma, has one main symptom, an enlarged spleen, and is diagnosed by white cell count. It does also have a series of secondary symptoms to watch out for as it worsens, night sweats, fever and weight loss (which I don’t appear to have). It can also reduce your platelets which it has in my case, giving you a whole run of other symptoms. (Thrombocytopenia)

  • Prolonged bleeding from cuts
  • Bleeding from your gums or nose
  • Blood in urine or stools
  • Unusually heavy menstrual flows
  • Fatigue
  • Enlarged spleen
  • Jaundice

Now I accept the enlarged spleen and fatigue are just doubling up on the two conditions, but it could be either.

Anyway long story short we will see how my tests come back in December with these new symptoms in mind. It may be time for a spleenectomy, or some kind of treatment. Until then I’ll just keep a towel by my bed in case of sweating like a sprinkler.

I guess I have been generally quite lucky with my health up until this point. The house party of food poisoning, where seven went down with it, and I didn’t. Not having had a day off sick in six and a half years. Maybe my luck has just run out a little.

Joking aside it is a little concerning, especially with our kids being so young. I had hoped I would get another five years symptomless. I may still do, other than a horrible fever every three months, which I would still take. I’d just like to see the kids grown up, and don’t ask for any more than that. If I get it, I won’t complain though!!

Hope you guys are all good. Sorry its been so long since I posted, I rather overblogged during the walk and wanted to give everyone a rest :). I’ll keep you posted on any developments and will see what research has been released lately for another blog in a few weeks.

Cheers all 🙂